"I love this little girl! She is a ray of sunshine in my therapy room!!"
Tessa is a bright little girl who enjoys interacting with people and loves to be active. She is a daredevil who always wants to go higher, faster and do more. Unfortunately, Tessa's diagnosis of PCDH-19 Epilepsy keeps her from doing all the things she would love to do. While Tessa's seizures, at this time, are mild, she is more affected by the global motor issues that come with her diagnosis. She struggles with movement, fine motor skills and speech. Her seizure clusters affect her mood and can make her upset with life for no apparent reason. We would love to see Tess be able to live each day to its fullest and have her get all that she can out of life. Right now that's not possible. With funding and research, girls like Tessa can lead a more fulfilling life.
PCDH19 Epilepsy is characterized by early onset seizures (usually beginning between 6 months to 5 years of age) with seizures most often occurring in clusters of seizures that can last from a day to weeks and are very difficult to stop with medications. The medications have all kinds of negative side-effects that affect her quality of life, including some that are potentially life threatening. The medicines can affect speech, learning, appetite, mood, behavior, IQ, continence, balance, as well as being hard on the liver and kidneys. And still, they don't stop the seizures from coming.
Join us in supporting real change. Let's support good in the world and make a difference. Help us find an effective treatment and ultimately a cure for PCDH19 Alliance, while we support children and families fighting this disease today through our patient assistance grant program.
Just a small donation will go a long way to helping me meet my goal for PCDH19 Alliance