"For our Precious Charlie "
UPDATE: Blew away the original goal of $500 within the first day! We've increased it to $1500. Let's do this!
Charley has PCDH19 epilepsy. She had her first seizures at 6 months old. We found out she has a mutation on the PCDH19 gene in July of 2015. While we were relieved to discover the cause of her seizures, we and ultimately she, faces unknown challenges. In addition to having seizures, girls with this type of epilepsy also have developmental delays, behavioral and mood disorders, and other physical, mental, and emotional disorders
Help us find an effective treatment and ultimately a cure for PCDH19 Alliance, while we support children and families fighting this disease today through our patient assistance grant program.
Just a small donation will go a long way to helping me meet my goal for PCDH19 Alliance