Kayla is one of many children with PCDH19 related epilepsy. While her seizures remain controlled through a strong anti-seizure medicine, many girls continue to have life threatening seizures no matter what drug they try. Our reality is that one day this drug could stop working for Kayla and we'll be back to a life with uncontrollable and life threatening seizures.
Luckily, there are many researchers interested in finding a cure for this disease and finding a way to stop the seizures from ever happening. Please join me in supporting real change and make a difference in the lives of those with PCDH19 Epilepsy. Help us find an effective treatment and ultimately a cure through the PCDH19 Alliance.
Just a small donation will go a long way to helping me meet my goal for PCDH19 Alliance.