Arielle is 2 years old, diagnosed with a rare genetic epilepsy, called PCDH19 Clustering Epilepsy. As a family we want to spread awareness for children to receive a diagnosis and raise money for research to find a cure for these brave little people. Thank you for your gift of hope!
Since Arielle's diagnosis, we have joined the PCDH19 Alliance and there is HOPE! The PCDH19 Alliance mission is to improve the lives of children and families who are affected by PCDH19 Clustering Epilepsy.
Here are some of the main efforts the PCDH19 Alliance focuses on:
1) Raising and directing funds to scientific research with the goal of finding better, more effective treatments, and ultimately, a cure.
2) Provide information and support to affected families
3) Assist in the efforts of the medical community, so no family suffers without a diagnosis and receives the most appropriate medical treatment.
Just a small donation goes a long way to helping me meet my goal for the PCDH19 Alliance. Will you help me in this venture to help my family and other fellow PCDH19 families?