Maegan is 11 years old and is diagnosed with rare PCDH19 clustering epilepsy. We, as a family, want to spread awareness for other girls to get a diagnosis and raise money for research to find a cure for these brave girls. Thanks for your gift of hope. God Bless you!
Since Maegan's diagnosis, we have joined the PCDH19 Alliance and there is HOPE:
The mission of the PCDH19 Alliance is to improve the lives of children and families who are affected by PCDH19 Female Epilepsy. The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective treatments and, ultimately, a cure; providing information and support to affected families; and assisting the efforts of the medical community, so that no family suffers without a diagnosis and the most appropriate medical treatment.
Just a small donation will go a long way to helping me meet my goal for PCDH19 Alliance